Sunday, 26 July 2009

week 20 july - 26th july 09

Hello everyone so i'm bad at updating this blog lol so thought i'll do it every week much easier that way of course unless something really annoys me and i need a rant.

Monday July 20th
So it was my 25th birthday and i had a lovely chilled day our new sofa arrived at half 9 in the morning and then me and my dad chilled out on that it's like sitting on a marshmallow lol. then about 12ish the sky man came to do our mutliroom. Then around half 1ish me and my dad went shopping for some clothes as a birthday present from him. he was encouraging me to spend loads but i was very good and didnt take the mick! Then we came home and my mum popped round to see me and arrange our plans for tuesday. I was told i could have what i wanted for dinner so i decided on a mcdonalds and some big macs lol. I didn't have cake as i don't like birthday cake.

Tuesday july 21st
I woke up about 8ish as my feed finished and checked my sugars they were 16 which is high for me so was bit worried. But i was also still tired so went back to sleep. i then woke up again about 11ish and had some breakfast and a cup of tea. my mum said she'd pick me up about 2ish to go shopping. so i just chilled an watched tv about half 12 i went and got washed and dressed. then bout quarter past 2 we went shopping. my mum bought me some more clothes and some gladaitor style sandals as i'd been after some for ages. i also bought a dress with my birthday money. luckily i got it in a size 12 as i'd not of got into a 10 lol. then i chilled out round my mum's.

wednesday 22nd july
Annual review day ergh! I woke up so hungry as was not allowed feed =( had to starve. got to hospital about 20 past 9 and was put in sideroom. Then my 2 fave cf nurses came in i have a laugh with them. and one of them broke the news that she's leaving =( i was bit upset as i find it hard to trust nurses etc. Then i had my bloods taken nurse c said that my nice juicy vein looks fed up so she tried another with no luck. so i said to her to try the fed up vein and it bled like a trooper lol. so after bloods it was time for the awful glucose drink but cos f my peg it ment it could go in through there yay! So 10 mins after that i started feeling sick lol the physio came and saw me and we went over my posture etc. i hunch forward a little. Then the dietician came and saw me wasn't much she could say lol as my weight was stable at 58.2kgs. I was asked to do the big lung function tests but said can i do them in the second part of my review which is in august and they said yeah no probs plus i showed them harefields test results. After 12 i had my other bloods done and then i could eat oh my god that cheese roll i had was nice lol. then off to x-ray and then back to mum's.

thursday 23rd july.
didn't have alot to do today so asked my mum if i could go round hers again which i did. on the way there i said who fancies a pizza from asda i'm paying my mum said nah and then she was like ian you've gone past the turn into our estate. he laughed and went i want pizza lol. my mum laughed and said well if yu go back home i can get some money and grab some other bits from asda. When we were in asda some fat bird was starring at me and ian turned round and said would you like me to bluetooth you a pic of her! the woman soon turned away lol. i have noticed loads more people starring at me lately. anyway went back to my mum's and had some yummy pizza!

friday 24th july
i had planned to tidy my room do my washing and tidy the bathroom. That didn't go to plan after i had rung the hospital for my blood results. my blood glucose levels had come back high which ment i'm now over the borderline line! i was gutted as now there's talk of insulin i know it's not a big deal to some but everything i didn't want to happen is happening! i was told i don't have to change my diet just to keep checking sugars with food which i am. my crp though is 13 which is good. i did soom washing then went and had a sleep.

saturday 25th july
today i tidyed my room it was a pain in te bum lol but now my room is tidy yay! not really much else done today just chilled out and pigged out!

sunday 26th july
Today i have a afternoon of sports first f1 then motogp whoop! am just relaxing on the sofa at the mo but fancy some lunch so am gonna go make some in a min. hehe. anyway i shall update you on what happens this week. who knows what it will bring =)

Sunday, 12 July 2009

so many emotions

Hiya sorrry again for not updating my blog for a while. The latest news is on the 6th of july i was officially listed on the transplant list. I was so happy and overwhelemed that i had done it i had finally got there after months of hard work and some of he worst months of my life with all the stress and worry that i'd not make it but i did and i'm so proud of myself for fianlly getting there. Yes it was long and very painful. I had my peg put in which hurt but was worth it looking at me now. and also all the dental work which was painful as well. But i would do it all again if i needed to cos it was my golden ticket to the transplant list and i know that i'll ge tthem new lungs at somepoint this year. it's a feeling i have and my mum feels the same. 2 postive things have also come from this actually 3
1. i am so much better with my medication and physio and feeds etc.
2. i've gained a huge amount of weight in a short space of time. and am maintaining it well.
3. i'm over my phobia of dentists lol and am now registered with a dentist :)

So i thought once i was listed all the stress would go away and that i could sit back and relax and juts wait for that call. How wrong was i? first few days of being listed i was a nightmare constantly on edge everytime my mobile rang i would jump. and get excited then deflate when i saw it was one of my parents lol. sounds harsh but i just want that call. Then the dreams oh my god i had dreams the first few nights that i was having my transplant. But now i'm alot calmer and relaxed and am just taking each day as it comes. I don't know when i'll get the call but i know from what my hospital said i'm a really good match for alot of people as i have the height the weight, the blood group and also i have a big chest which all helps. so they said i prob won't be waiting long but who knows. My bag is all packed so is my dad's and my mum's lol. my dad is on edge waiting for the call which makes me chuckle. I bout loads of new jogging bottms and cardigans that button up as from what people have said it's painful lifting your arms for a while. also got button up pj's.
I am scared of transplant but the only thing i'm really scared of is the tube still being down my throat when i wake up. as they don't remove it till there happy that your ok breathing on your own when awake which i understand but i know me being me i'm gonna be pulling on that thing when i wake up. and i'm abit nervous bout the chest drains and how many there will be it can vary from 2-6 i was told but we will see. just be nice to breathe properly again. I'm also going to write a letter for the donors family to say thank you. I know my dad is gonna be a right mess during the op as he was on edge when i was getting my peg put in lol bless him. they will be updated every now and then i have been told.

not much else to report. I set dave my dog up on facebook after seeing gemma's dog alfie had a account lol. and my mum has been off work the past week so spent a few days round hers hanging out which was nice she dyed my hair red but cos it was black it's not really gone very red it's kinda black with a red tint lol.

Thursday, 2 July 2009

it's done

yay all of my dental work is done i go back in 6 months for routine checkups.
i have been prescribed some toothpaste and told to buy an electric toothbrush. i'm so happy.
i was told to go home and rest but i went shopping instead haha needed some food. my mouth was fine didn't hurt at all. :)

so now just wait to be rang and informed that i'm listed and hen just wait for that special call. :)